Journal
Stories & caregiver guides
My father's journey, alongside sourced reading for fellow caregivers.
Caregiver guides
Caregiver guide · 21 October 2026
Parkinson’s ON and OFF Periods: A Caregiver’s Guide to a Symptom Diary
What ON and OFF mean, which changes to record, and how to bring a clearer symptom diary to the neurologist without guessing or changing medication.
3 min read
Caregiver guide · 21 October 2026
Parkinson’s Caregiver Stress: Asking for Support Without Guilt
Recognising caregiver strain, making specific requests for help, and finding support while respecting the person with Parkinson’s and your own limits.
3 min read
Caregiver guide · 21 October 2026
Parkinson’s Sleep Problems: What Caregivers Can Notice at Night
Insomnia, nighttime waking, dream enactment and daytime sleepiness: useful observations, safety concerns and questions to discuss with the care team.
3 min read
Our story, in order
Early signs · Around 2012 (date uncertain)
The First Tremor: Looking Back at Around 2012
Looking back, the beginning was quiet — a gradual shaking in his hand, mostly on the left side. We still cannot say exactly when it started.
2 min read
Diagnosis · 2015
2015: Hearing the Word Parkinson's
In 2015, at Square Hospital in Dhaka, the tremor finally had a name. Our family recalls medication beginning around January 2016 — and for a while, the shaking stopped.
2 min read
Progression · 2016–2020
2016–2020: The Years We Cannot Fully Reconstruct
Care in Dhaka, Rajshahi and India, with an incomplete record. Father recalls Syndopa 125 from India before ~2021; its exact start date and dose frequency are unknown.
2 min read
Treatment · Around 2021
Around 2021: Our First Consultation with Prof. Dr. Md. Amirul Haque
Father had already received Syndopa 125 during treatment in India. The first Amirul Haque consultation was around 2021; its medicine schedule is not confirmed.
2 min read
Treatment · 25 March 2023
2023: Two Verified Historical Prescriptions
The prescriptions dated 25 March and 21 August 2023 document different medicines and Perkirol schedules. Neither date confirms when the medicines were actually taken.
3 min read
Treatment · 2024
2024: Abu Dhabi and the Problem of OFF Periods
Dr. Shivam Om Mittal prescribed Oridopa 25/100, two tablets five times daily. It helped initially, but the OFF periods did not go away.
2 min read
Daily life · April–May 2025
April–May 2025: The Hardest Months
He could not sleep, could not lie down comfortably, and could not stand or walk without help. This is what those weeks were like for our family.
2 min read
Treatment · May–June 2025
May–June 2025: A Month in Bangkok
At Bumrungrad Hospital, Dr. Amputch Karukote added Madopar HBS 125 to Oridopa. Sleep improved to around three to four hours — but late afternoons stayed hard.
2 min read
Motor diary · 19 October 2026
19 October 2026: A Day on the Old Schedule
Five dose times, relief windows we could almost predict, a 4 PM dose that often did nothing — and many dose failures. A record of the schedule before it changed.
2 min read
Treatment · 20–21 October 2026
20–21 October 2026: A Medication Change and the First Night
During a family-reported return visit to Dr. Shivam Om Mittal at Cleveland Clinic Abu Dhabi, Madopar HBS was replaced with scheduled Madopar Dispersible 125. Early mobility seemed better, but the first night brought sleeplessness, unclear speech and chewing-like movements.
2 min read