Progression · 2016–2020
2016–2020: Gaps in Our Records
Care in Dhaka, Rajshahi and India, with an incomplete record. Father recalls Syndopa 125 from India before ~2021; its exact start date and dose frequency are unknown.
By an anonymous caregiver · 2 min read
Personal experience, not medical advice. I share our family's experience here. Talk to your doctor before starting, stopping or changing any medicine. New or worsening speech trouble, facial drooping or sudden weakness can be an emergency. Seek urgent medical help immediately. Full disclaimer
Between 2016 and 2020, my father consulted doctors in Dhaka, Rajshahi and India. Over those years his condition progressively worsened. Our record of the medicines and doses remains incomplete, but father has clarified one part of that history.
Syndopa 125 in India — before ~2021
Father says he started Syndopa 125, obtained during treatment in India, before he first consulted Prof. Dr. Md. Amirul Haque at Bangladesh Specialized Hospital around 2021. This is what my father remembers. We do not have a dated prescription to confirm it. The exact India visit and Syndopa start dates, tablets per dose and dose frequency are unknown.
Our family recalls the earliest Parkinson's medication starting around January 2016, but we do not know whether Syndopa was that first medicine. We keep these two facts separate. Syndopa 125, Codopa 275 mg and Stalevo 125 mg are different reported brands/formulations. We do not know when he moved from one to another.
Why this page has gaps
We cannot fill these gaps from memory alone. Another family might compare this history with their own parent's treatment, so I want to be clear about what we do not know.
What we noticed as a family
Movement became harder, and the medicine that had seemed to stop the shaking no longer seemed enough. We hoped each consultation would help. Over time, we understood that his care would need to keep changing.
Travelling between cities and countries for care is exhausting for a person with Parkinson's, and for the people beside them. Every journey involves planning around energy, mobility and medicine times.
A lesson about records
- Keep copies of every prescription, even old ones.
- Photograph medicine packs so brand, strength and composition are clear.
- Bring a one-page summary of history to every new doctor.
This is one reason I started this blog. I want us to keep better records from now on.