Read-only public diary · anonymous family reports
Motor Diary
The hours between doses.
My father's reported movement patterns and difficult nights. This is not continuous monitoring: approximate boundaries and unrecorded hours remain visibly unknown.
Choose a reported date
A day, with its gaps.
20 October 2026 (regimen changed ~4 PM)
Midnight → midnight · 30-minute slots
Reported ON duration 16 hours (approx) — one continuous family report from noon on 20 October to 4 AM on 21 October, not 32 individually verified half-hour boxes.
- ▲ New regimen starts ~4 PM
The ON report starts at noon, four hours before the new regimen. A medicine marker is not proof that the medicine caused the reported state. Hatched colouring marks an approximate continuous family report rather than individually verified half-hour boxes.
Swipe the chart sideways to see all 24 hours.
ON
Reported movement benefit.
OFF
Reported return or worsening of motor difficulties.
ON with troublesome dyskinesia
ON with troublesome involuntary movements; not confirmed in these records.
Asleep
Sleep only when a reported time interval is known.
Unknown / not reported
Unreported or only partly known. Not the same as OFF.
Approximate family report
A continuous reported window drawn across 30-minute slots. The individual half-hours were not separately verified.
Timed diary entry
A solid block would mark a slot recorded at the time. Our current public record contains approximate reports only.
Reported windows
- 12 AM–12 PMUnknown / not reported
- 12 PM–12 AM · approxON
What I observed · context matters
- Reported ON from ~noon 20 Oct to ~4 AM 21 Oct. This began four hours BEFORE the ~4 PM regimen change and must not be attributed to the new medicine.
- Overnight: prolonged sleeplessness, intermittent chewing-like movements and recurrent unclear speech (worse overnight). Possible dyskinesia — not diagnosed, so not charted as dyskinesia.
- BP ~90 systolic rising to ~125 after 30 min reported; diastolic and position unknown.
Beyond movement.
Symptoms in our wider record
Severe OFF immobility, stiffness or pulling in the back, arms and legs; numbness, dizziness, constipation and disturbed sleep. Urinary frequency was often reported as 15–20 times daily and 8–12 overnight, with small interrupted amounts. Occasional facial asymmetry, unclear speech and chewing-like movements are concerns, not diagnoses.
Blood pressure · both low and high
Family-reported systolic readings were roughly 90–110 at low times and 150–160 at high times. Higher readings sometimes coincided with stress or arguments; this does not establish cause. A reading around 90 rose to around 125 after 30 minutes on 20–21 October; diastolic pressure and position were unknown. These observations are clinical context, not Parkinson's medicine entries.
New or worsening speech difficulty, facial drooping or sudden weakness requires urgent medical help.
Personal experience, not medical advice. This is one family's account. Never start, stop or change any medicine without your doctor. New or worsening slurred speech, facial drooping or sudden weakness can be an emergency — seek urgent medical help immediately. Full disclaimer